Lexi Lee Walk for Hope at the Alabama Jubilee and Hot Air Balloon Festival

StJude

Over the last 8 months I have participated in various events for a 3 year old little girl in my community. Her mother and I were co-workers and then became friends as the recent events in Lexi’s life unfolded. Here is Lexi’s story directly from her mother:

Lexi’s Story
Within 2 weeks, Lexi had 20 to 30 unexplainable, thumb print size, dark bruises mainly on her legs but on the rest of her body as well. After noticing the excessive amount of bruising, with no explanation and no signs of going away, instead more were showing up, an appointment with her local Pediatrician was scheduled and blood work was done. Then, about four hours later while Lexi was playing outside on the swing set, the phone rang. Lexi’s blood-work came back abnormal and we were told to take her to Huntsville Hospital as a direct admit. Fear and confusion set in. Lexi was outside, playing like a normal 3 year old child and hours later she was being poked for more blood-work. Later that evening we got news that she might possibly have a blood disorder or leukemia. On September 24, 2013, the oncologist came in and told us the confirmed unfortunate news. Our beautiful daughter who we had bragged on since birth for being so healthy and never getting sick had the c word. She has cancer. She has Acute Lymphoblastic Leukemia, commonly known as ALL, or just simply, Leukemia. That was the day our lives changed forever. We did not know what to do other than pray. Doctors at Huntsville Hospital gave us options as to where to receive treatment for Lexi and when St. Jude Children’s Research Hospital was mentioned, we knew that was where we wanted Lexi to be. We knew there was no better place for Lexi to receive treatment. No family ever pays for anything at St. Jude. Because of events like, The Lexi Lee Walk for Hope, with the help of participants like YOU, my daughter is getting a second chance at life. Without the funding for research, Lexi and many other children would not be so lucky. People like you make this possible for our daughter and our family as well as so many other children and families. We will never be able to say “thank you” enough to all of the researchers who work to find the medicine and cures or the doctors and nurses who care for the children, so as a way of saying “thank you” and helping bring awareness to childhood cancer and it’s need for funding, our family is hosting The Lexi Lee Walk for Hope. Our goal in hosting The Lexi Lee Walk for Hope is to raise money for St. Jude Children’s Research Hospital.
Donations like yours allow research like this to happen!
YOU are helping St. Jude save lives by making a simple donation!
We, Lexi’s parents & family, want to say THANK YOU!
**100% MONEY RAISED WILL GO TO ST. JUDE CHILDREN’S RESEARCH HOSPITAL – MEMPHIS, TN.**

Update on Lexi
Lexi is doing amazing! She is in the last phase of her treatment which consists of 2 ½ – 3 years. The last phase consists of 120 weeks. As of today, May 21, 2014, she is on week 15. We have a long road ahead of us even after the 120 week mark. Currently, Lexi receives at home chemotherapy which we give to her at night time. She also has an appointment each week at the Huntsville Hospital St. Jude Clinic where she receives chemotherapy, physical therapy and musical therapy. Sometimes she needs blood and/or platelets, which she is able to receive at the affiliate. She also goes to St. Jude in Memphis for check-ups, intrathecal chemotherapy and more intense chemotherapy. Some of the chemotherapy Lexi receives causes the leg and hand muscles to weaken and some cause nausea but if you saw Lexi, you wouldn’t believe that’s true. She runs and plays all the time like nothing is wrong. Even on clinic days when she has received chemotherapy, she comes home and runs and plays like it’s a normal day. For that, we are thankful!

Pictures of Lexi Lee and her Family:

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Chase, Jenna, and Lexi Chase Lee at St. Jude

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Lexi in the early days at St. Jude

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Lexi getting to play video games and still be a kid!

The Lexi Lee Walk for Hope was held at the Alabama Jubilee and Hot Air Balloon Festival in Decatur, AL. The Jubilee is held every year around Memorial Day Weekend. The walk was at 9 a.m. on Saturday and was a great and upbeat way to start the weekend! I love doing positive things and being active on a long weekend because it makes my time feel more accomplished. I invited my Girl Scout troop and also took my daughter along. It turned out great!

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This was the flyer distributed for the event.

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My daughter, Khloe, and Lexi’s Mom, Jenna. Lexi did not get to be at the event, but everyone still came out in support!

Lexi Lee Walk for Hope

Sign up table at the walk (:

HERE IS A LITTLE FYI ABOUT ST. JUDE CHILDREN’S RESEARCH HOSPITAL:

In 1962, the survival rate for Acute Lymphoblastic Leukemia (which is what Lexi is diagnosed with) was only 4%. Thanks to St. Jude & it’s research, the survival rate has reached 94%!!
• On average, 5,700 active patients visit the hospital each year, most of whom are treated on an outpatient basis.
• St. Jude is the first and only pediatric cancer center to be designated as a Comprehensive Cancer Center by the National Cancer Institute.
• St. Jude has treated children from all 50 states and from around the world.
• The daily operating costs for St. Jude are $1.6 million, which are primarily covered by public contributions.
• During the past five years, 81 cents of every dollar received has supported the research and treatment at St. Jude Children’s Research Hospital.

If you would like to have updated information on Lexi’s progress or would like information on how to donate to the Lexi Lee Walk for Hope you can follow the pages on Facebook here and here. Also, Lexi’s mom blogs here.1240607_10202265096095892_106046578_n

My daughter and I didn’t get to stay long for the Jubilee after the walk, but we did get in a few hot air balloon sightings. (Next year it is my goal to go for the balloon glow and get to do a tethered ride. 😀 )

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We did get to see one balloon up while we were there and my daughter was SO EXCITED. She told everyone about it the rest of the day.

 

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2 thoughts on “Lexi Lee Walk for Hope at the Alabama Jubilee and Hot Air Balloon Festival

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